Coping Strategies for Social Challenges in Mothers of Children With Autism: A Content Analysis Study
Abstract
Objective: Mothers of children with autism spectrum disorder (ASD) in Iran encounter profound social challenges, such as stigma, blame, isolation, and inadequate support, intensified by cultural norms and limited resources. This qualitative study aimed to explore coping strategies used by these mothers in Urmia, northwestern Iran.
Materials and methods: Employing conventional content analysis per Graneheim and Lundman’s framework, we purposively sampled 18 mothers of children aged 3–18 years with confirmed ASD, ensuring maximum variation. Semi-structured in-depth interviews were conducted from January 2024 to June 2025 until data saturation. Transcripts were coded and analyzed iteratively via MAXQDA software, with rigor maintained through credibility, dependability, confirmability, and transferability.
Results: The overarching theme was “Multifaceted Coping Strategies for Social Challenges,” encompassing four categories: [1] Individual Coping Factors (acceptance, positive reappraisal, self-care, emotional regulation, knowledge acquisition); [2] Interpersonal and Relational Coping Factors (selective social engagement, family/spousal support, educating others); [3] Spiritual and Cultural Coping Factors (religious beliefs, prayer, finding meaning, patience); and [4] Community and External Support Coping Factors (support groups, advocacy, awareness efforts, professional guidance).
Conclusion: Mothers integrated emotion-focused (especially spiritual) and problem-focused strategies, influenced by Iranian cultural, religious, and collectivist contexts, underscoring needs for culturally tailored interventions, stigma reduction, and enhanced support services to bolster resilience.
2. Javadian SR, Kafi FS, Babaeian N, Sadati AK. The coping strategies to autism disorder among mothers of autistic children: A qualitative study. Iranian Journal of Rehabilitation Research in Nursing. 2022;8(3):17-29.
3. Ebadi M, Samadi SA, Mardani‐Hamooleh M, Seyedfatemi N. Living under psychosocial pressure: Perception of mothers of children with autism spectrum disorders. J Child Adolesc Psychiatr Nurs. 2021;34(3):212-8.
4. Fereidouni Z, Kamyab AH, Dehghan A, Khiyali Z, Ziapour A, Mehedi N, et al. A comparative study on the quality of life and resilience of mothers with disabled and neurotypically developing children in Iran. Heliyon. 2021;7(6):e07285.
5. Masoudi M, Maasoumi R, Effatpanah M, Bragazzi NL, Montazeri A. Exploring experiences of psychological distress among Iranian parents in dealing with the sexual behaviors of their children with autism spectrum disorder: a qualitative study. J Med Life. 2022;15(1):26-33.
6. Khougar A, Ahadi P, Ahadi M. A critical feminist study of mothers raising a child on the autism spectrum in Iran. npj Women's Health. 2024;2(1):25.
7. Haytham A-O, Khuan L, Ying LP, Hassouneh O. Coping mechanism among parents of children with autism spectrum disorder: a review. Iran J Child Neurol. 2022;16(1):9.
8. Brien-Bérard M, des Rivières-Pigeon C. Coping strategies and the marital relationship among parents raising children with ASD. Journal of Child and Family Studies. 2023;32(3):908-25.
9. Papadopoulos D. Mothers’ experiences and challenges raising a child with autism spectrum disorder: A qualitative study. Brain Sci. 2021;11(3):309.
10. Maqbool S, Zafeer HMI, Maqbool S. Psychological impact of raising a child with autism: a real life case study of expatriate family. Child & Family Social Work. 2026; 31(2): 859–868.
11. Yavari S, Jofreh MG. Comparison of Mental Health, Stress and Coping Methods in Mothers of Children with/without Autism in Ahvaz. Jundishapur Journal of Chronic Disease Care. 2021;10(4): e116045.
12. Hosseinpour A, Younesi SJ, Azkhosh M, Safi MH, Biglarian A. Exploring challenges and needs of parents providing care to children with autism spectrum disorders: A qualitative study. Iranian Journal of Psychiatry and Behavioral Sciences. 2022;16(3): e127300.
13. Shaebani M, Aghaei A. The Comparison of Coping Strategies and Hardiness of Mothers of Autistic Children and Mothers of Children with Attention Deficit Hyperactivity Disorder. Journal of Health System Research. 2021;16(4):228-34.
14. Yoosefi lebni J, Ziapour A, Khosravi B, Rahimi khalifeh kandi Z. Lived experience of mothers of children with disabilities: a qualitative study of Iran. Journal of Public Health. 2021;29(5):1173-9.
15. Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today. 2004;24(2):105-12.
16. Lincoln YS, Guba EG. Criteria for Assessing Naturalistic Inquiries as Reports. Paper presented at the annual meeting of the American Educational Research Association. https://scispace.com/pdf/criteria-for-assessing-naturalistic-inquiries-as-reports-22nvbn8edb.pdf, 1988 (accessed 2 March 2026).
17. Bakhtiari-Dovvombaygi H, Zare-Kaseb A, Nazari AM, Rezazadeh Y, Bahramnezhad F. The effect of interventions on quality of life, depression, and the burden of care of stroke patients and their caregivers: a systematic review. J Neurosci Nurs. 2024:10.1097.
18. Alqunaibet T. Ethnographic study of the religious coping forms of mothers’ experiences of bringing up a child with ASD in Saudi Arabia[dissertation]. London: UCL (University College London); 2021.319 p. Available at: https://discovery.ucl.ac.uk/id/eprint/10127280/ (Accessed 6 Mrch 2026).
19. Lamba N, Van Tonder A, Shrivastava A, Raghavan A. Exploring challenges and support structures of mothers with children with Autism Spectrum Disorder in the United Arab Emirates. Res Dev Disabil. 2022;120:104138.
20. Daulay N, Daulay H, Rohman F. Religious coping of Muslim mothers of children with autism spectrum disorder in Indonesia. Journal of Disability & Religion. 2025;29(1):33-50.
21. Mohamad SP, Yusoff MY, Adli DSH, Golden KJ. Mental Health Studies on The Coping Strategies of Muslim Parents of Children with Autism Spectrum Disorder in Malaysia (A Narrative Review). Malaysian Journal of Medicine & Health Sciences. 2019;15:174-177.
22. Rafii F, Seyedfatemi N, Asgarabad HE. The life of mothers of children with Autism: A grounded theory study. Revista Latinoamericana de Hipertension. 2024;19(4):154-62.
23. Mansour E. The information-seeking behaviour of Egyptian parents of children with Autism Spectrum Disorder (ASD): a descriptive study. Online Information Review. 2021;45(7):1189-207.
24. Smith CA, Parton C, King M, Gallego G. Parents’ experiences of information-seeking and decision-making regarding complementary medicine for children with autism spectrum disorder: a qualitative study. BMC Complement Med Ther. 2020;20(1):4.
25. Masaba BB, Taiswa J, Mmusi-Phetoe RM. Challenges of caregivers having children with Autism in Kenya: systematic review. Iran J Nurs Midwifery Res. 2021;26(5):373-9.
26. Porter N, Loveland KA, Honda H, Yamane T. What is a good mother of children with autism? A cross-cultural comparison between the US and Japan. J Autism Dev Disord. 2025;55(2):739-51.
27. Soltanifar A, Akbarzadeh F, Moharreri F, Soltanifar A, Ebrahimi A, Mokhber N, et al. Comparison of parental stress among mothers and fathers of children with autistic spectrum disorder in Iran. Iran J Nurs Midwifery Res. 2015;20(1):93-8.
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| Issue | Vol 20, No 1 (March 2026) | |
| Section | Original Articles | |
| Keywords | ||
| Autism Spectrum Disorder Mothers Coping Strategies Social Challenges Qualitative Content Analysis | ||
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